Tag: Value of Hope

Caregiver risk preferences for delaying loss of ambulation in Duchenne muscular dystrophy

Jason Shafrin

That is the title of a paper published today in Current Medical Research and Opinion with co-authors Nadine Zawadzki, Moises Marin, Ivana Audhya, Lauren Sedita, Natasha Kulkarni and Alexa Klimchak. The abstract is below. ObjectivesQuantify caregiver risk preferences to inform the “value of hope” for Duchenne muscular dystrophy (DMD) therapies affecting time to loss of…

Special Issue on Value Assessment Frameworks

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Value in Health has a Special Issue on Value Assessment Frameworks.   The issue includes one of my papers (co-authored with Taylor T. Schwartz, Tony Okoro, John A. Romley) titled Patient Versus Physician Valuation of Durable Survival Gains: Implications for Value Framework Assessments.  The abstract is below.   Background: Previous research indicates that patients value therapies that provide…