Data-driven approach for estimating caregiver burden

How does patient quality of life impact caregiving burden? Often this is determined using caregiver surveys. However, a paper by Jiao et al. (2025) aims to use a data based approach to help estimate caregiver burden. They The authors use data from the 2010-2018 Health and Retirement Survey (HRS). HRS data was selected because there…

Caregiver risk preferences for delaying loss of ambulation in Duchenne muscular dystrophy

That is the title of a paper published today in Current Medical Research and Opinion with co-authors Nadine Zawadzki, Moises Marin, Ivana Audhya, Lauren Sedita, Natasha Kulkarni and Alexa Klimchak. The abstract is below. ObjectivesQuantify caregiver risk preferences to inform the “value of hope” for Duchenne muscular dystrophy (DMD) therapies affecting time to loss of…

SHEER: Good practices for incorporating family and caregiver spillovers into health economic evaluations

Illnesses impact not only the patients, but oftentimes impact caregivers and family members as well. However, most economic analyses do not incorporate a diseases’ spillover impacts on caregivers. …a recent review of NICE evaluations revealed that only 3% of technology appraisals included caregiver health-related quality of life (HRQoL) in cost-utility analyses (CUAs). Similarly, Lamsal [2022]…

Measuring caregiver quality of life

Poor health does not just affect the patient, but also the caregiver who provide physicial, emotional and financial support for these patients. To measure the impact of a disease on patient quality of life, there are a number of metrics one can choose from such as EQ-5D-5L, EQ-5D-VAS, SF-36 among others. Some of these surveys…