How do pain crises affect quality of life and productivity among patients with sickle cell disease?

I provide the answer to this question in a recent paper in Current Medical Research & Opinion with co-authors Howard Thom, Edna Keeney, Daisy Gaunt, Lauren Zhao, Menaka Bhor, Avery Rizio, Lanetta Bronté-Hall and Nirmish Shah. The abstract is below. AimSickle cell disease (SCD) is a lifelong blood disorder affecting approximately 100,000 individuals in the…

Open-Source Tools for Value Assessment

While many advancements have been made thus far in the progression toward value-based health care, there are persistent challenges in the measurement of value. In order to deliver value-based care, health care decision makers, eg, insurers and health system administrators, need value data at their fingertips—data that are relevant to their own context and reflect…

Special Issue on Value Assessment Frameworks

Value in Health has a Special Issue on Value Assessment Frameworks.   The issue includes one of my papers (co-authored with Taylor T. Schwartz, Tony Okoro, John A. Romley) titled Patient Versus Physician Valuation of Durable Survival Gains: Implications for Value Framework Assessments.  The abstract is below.   Background: Previous research indicates that patients value therapies that provide…

Quality-Adjusted Cost Of Care

One of my paper (along with co-authors Darius Lakdawalla, Claudio Lucarelli, Sean Nicholson, Zeba M. Khan and Tomas J. Philipson) was published at Health Affairs.  The title of the study is: Quality-Adjusted Cost Of Care: A Meaningful Way To Measure Growth In Innovation Cost Versus The Value Of Health Gains.  The abstract is below. Technology drives both…