Real-World Patient-Centered Research: Is It Possible Across Countries

That was the title of the second plenary at ISPOR Europe this year. One interesting slide from Nancy Devlin who outlined how different countries used different patient-reported outcome measures (PROMs). English NHS PROMs programme. Variation in provider performance linked to reimbursement UK Private Healthcare Information Network (PHIN). Part of an initiative to improve patient choice…

Association of health care utilization and costs with patient-reported outcomes in patients with ankylosing spondylitis

That is the title of paper recently published in JMCP along with co-authors Alexis Ogdie, Mark Hwang, Phani Veeranki, Alexandria Portelli, Steven Sison, Sofia Pedro, Steven Hass, Peter Hur, Nina Kim, Esther Yi, and Kaleb Michaud. The paper abstract is below. BACKGROUND: Interventions for ankylosing spondylitis (AS) have improved patient-reported outcomes (PROs) in clinical studies. However,…

Health care utilization and costs associated with functional status in patients with psoriatic arthritis

That is the title of paper recently published in JMCP along with co-authors Alexis Ogdie, Mark Hwang, Phani Veeranki, Alexandria Portelli, Steven Sison, Sofia Pedro, Steven Hass, Peter Hur, Nina Kim, Esther Yi, and Kaleb Michaud. The paper abstract is below. BACKGROUND: The Health Assessment Questionnaire Disability Index (HAQ-DI) has been validated and widely used in…

A cancer tool to improve survival?

A recent paper by Basch et al. 2017, found that electronic patient-reported symptom monitoring improved patient overall survival by 5 months.  This finding came from a randomized clinical trial at Memorial Sloan Kettering. For patients in the arm with electronic patient-reported symptom monitoring, when “…participants reported a severe or worsening symptom, an email alert was triggered to a clinical…

How do payers use patient reported outcomes?

This is the question asked by a study conducted by Brogen et al. (2017).  To see how payers use patient reported outcomes (PRO) in oncology, the authors conducted a literatures search, and searched the websites of the following health technology assessment bodies: Pharmaceutical Benefits Advisory Committee (PBAC) in Australia, Canadian Agency for Drugs and Technologies…